Give John A little help with his MS New Device GoFundMe
Hi there, my name is John, and my worsening MS has taken quite a bad turn since Covid rolled through....
I wanted to please ask for your help with a little bit of fundraising for a medical device purchase that I think might be able to help.
It is a device that has the possibility of helping me walk better, get around better, and hopefully I could even be able to return to work at some time.
(Update: We just took this picture on December 28 2024, and it's a great picture but basically Sara and little John (who is not so little anymore as you can see) and Abigail had to help me walk the few feet from where we parked to stand there by the creek. Five years ago I could jog about 5 miles without stopping. Today even 5 feet needs help.)
I've had Ms since about 20 but it only started going very aggressively downhill since 2021 and getting Covid a few times (and also poor diet control)...
**(I'm sorry for the poor grammar in my first message, the speech to text and autotext, and also late night fundraiser creation, and a rather slipping mind from the ms I give some blame to. So I've corrected and updated things now.)
Why this fundraiser?
It's a big claim, but the device I'm hoping to purchase is called PENS and it's basically a nerve triggering device that gets attached to my ear for about 2 and 1/2 Weeks. It's designed primarily for neuropathy and nerve pain, and I don't have pain from the MS, but I do have the neuropathy side and a lot of problems with walking and balance and leg control as well as quite a few other problems. This device is similar to the one that Montel Williams has used for more than a decade to help with his MS, his walking and mobility. However, the one that he uses costs $25,000 now (PONS device), and that's just out of reach, but this one is $4,000 (PENS device) so it's more in reach.
Why does it cost $4000?
It is because the doctor who is helping me it (Dr Stephen Earle of the National Neuropathy Center) said he would give me the device at cost and at no profit to himself, which is very generous I think.
Originally I was trying to wait for the social security disability application that I'm in the process of right now, because it would make it free if I'm approved.
But just as of December 18th I got rejected after our court date (by telephone) and so the next step will be awaiting an appeal that can possibly take another year or more.
Anyway, long story short, if the disability determination had have happened then I likely would have been able to get the device covered by Medicare or Medicaid, but as it is, my current insurance with Medicaid does not cover it.
Because the attorneys were shocked the judge rejected the case, and because they saw errors with the ruling, they are working the decision.
The other long story short is that I haven't been able to work for about the last 2 years. I can barely drive anymore and I don't hardly get around either. So what I'm hoping to do is to raise the $4,000 to purchase the medical device at cost with my all my friends help and from the National Neuropathy Center in Fredericksburg. Although it is not designed for Ms treatment specifically, I spoke with the owner of the company that makes the device and he explained how it helps modulate and calm the Vegas nerve in the body. And just like it helps relieve the pain in some of the neuropathy patients that they've already treated successfully (so they can walk better with less pain) it's my hope that it can help calm the nerves because MS has a lot to do with inflamed nerves.
Thank you very kindly for your help to raise this $4000 so I can purchase this device.....
I am extremely grateful. God bless and many thanks again.
Thank you to all donors
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